Contenido principal del artículo

Maria João Carapeto
Psicologa
Portugal
http://orcid.org/0000-0001-8912-9916
Adelinda Candeias
Departamento de Psicologia, Escola de Ciências Sociais, Universidade de Évora
Portugal
http://orcid.org/0000-0002-9489-8880
Vitor Franco
Departamento de Psicologia, Escola de Ciências Sociais, Universidade de Évora
Portugal
http://orcid.org/0000-0001-6510-6146
Luísa Grácio
Departamento de Psicologia, Escola de Ciências Sociais, Universidade de Évora
Portugal
http://orcid.org/0000-0001-9805-3378
Cátia Sofia Coelho
Departamento de Psicologia, Escola de Ciências Sociais, Universidade de Évora
Portugal
http://orcid.org/0000-0003-1373-1366
Nuno Costa
Departamento de Psicologia, Escola de Ciências Sociais, Universidade de Évora
Portugal
http://orcid.org/0000-0002-5091-3970
Vol. Extr., núm. 11 (2017) - XIV CIG-PP, XIV Congreso Psicopedagogía. Área 11: NECESIDADES EDUCATIVAS ESPECIALES, páginas 156-161
DOI: https://doi.org/10.17979/reipe.2017.0.11.2660
Enviado: jul 15, 2017 Aceptado: dic 13, 2017 Publicado: dic 17, 2017
Derechos de autoría Cómo citar

Resumen

This study explores: (a) previous conceptions of parents/professionals about the quality of life of youth with special needs, and their fit with the Schalock and Verdugo’s core dimensions; (b) possible differences in its pattern throughout development. The participants responded to a collective, semi-structured questionnaire that provided a sort of characteristics or aspects related to the quality of life (from the participant standpoint) of young persons with special education needs. The obtained characteristics were content analyzed, and developmental phases were compared. The results were discussed according to the existing literature, as well as some implications to research, training and practice.

Detalles del artículo

Referencias

Albuquerque, C. P. (2012). Psychometric Properties of the Portuguese Version of the Quality of Life Questionnaire (QOL‐Q). Journal of Applied Research in Intellectual Disabilities, 25(5), 445-454. http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3148.2012.00685.x/epdf

Bardin, L. (2009). Análise de conteúdo (4ª Ed.). Lisboa: Edições 70.

Candeias, A., Portelada, A., Costa, N., Grácio, L., Franco, V., Carapeto, M. J., ... Coelho, C. (2017, July). Mediadores para a inclusão: Avaliação de uma proposta de formação transdisciplinar no âmbito do projeto ENABLIN+. Poster presented at the V Congresso Internacional – Educação, Inclusão e Inovação. Pin-ANDEE, Lisboa, PT.

Enablin+ Project (n.d.). Retrieved July 12, 2017, from the project website, http://enablinplus.eu/en.

Felce, D. & Perry, J. (1995). Quality of life: its definition and measurement. Research in Developmental Disabilities, 16, 51–74. https://doi.org/10.1016/0891-4222(94)00028-8

Gaspar, T., de Matos, M. M. N. G., Ribeiro, J. L. P., Leal, I., Erhart, M., & Ravens-Sieberer, U. (2010). Kidscreen: Quality of life in children and adolescents. Revista de Psicologia da Criança e do Adolescente, 1(1), 49-64

Gómez, L. E., Verdugo, M. Á., & Arias, B. (2010). Calidad de vida individual: avances en su conceptualización y retos emergentes en el ámbito de la discapacidad. Psicología Conductual, 18(3), 453.

Kelly. G. A. (1955). The Psychology of Personal Constructs. New York: Norton.

Masten, A. S., Burt, K. B., & Coatsworth, J. D. (2006). Competence and psychopathology in development. In D. Cicchetti & D. J. Cohen (Eds.), Developmental psychopathology. Vol. 3. Risk, disorder, and adaptation (pp. 696–738). Hoboken, N.J.: Wiley.

Ministério da Educação (2008). Decreto-Lei nº 3/2008, de 7 de Janeiro. Diário da República, 1ª série, Nº 4, 154- 164. http://www.dge.mec.pt/legislacao-2 [Retrieved 14 July 2017].

Ministério da Educação e Ciência de Portugal (2015). Portaria nº 201-C/2015, 10 de julho. Diário da República, n.º 133/2015, 1º Suplemento, Série I, pp. 4782-(7) – 4782-(10). https://dre.pt/application/file/69773363 [Retrieved 14 July 2017].

Moscovici, S. (1981). A representação social da psicanálise. Rio de Janeiro: Zahar.

Petry, K., Maes, B., & Vlaskamp, C. (2005). Domains of quality of life of people with profound multiple disabilities: The perspective of parents and direct support staff. Journal of Applied Research in Intellectual Disabilities, 18(1), 35-46. http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3148.2004.00209.x/epdf

Schalock, R. L., & Verdugo, M. A. (2003). Quality of life for human service practitioners. Washington, DC: American Association on Mental Retardation.

Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., Felce, D., Matikka, L., ... & Parmenter, T. (2002). Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Mental retardation, 40(6), 457-470. https://doi.org/10.1352/0047-6765(2002)040<0457:CMAAOQ>2.0.CO;2

United Nations (2006) Convention on the rights of persons with disabilities. Available at: https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html [Retrieved 13 June 2017].

Vaz Serra, A., Canavarro, M. C., Simões, M., Pereira, M., Gameiro, S., Quartilho, M. J., ... & Paredes, T. (2006). Estudos psicométricos do instrumento de avaliação da qualidade de vida da Organização Mundial de Saúde (WHOQOL-Bref) para Português de Portugal. Psiquiatria clínica, 27 (1), 41-49.

Verdugo, M. A., Gómez, L. E., & Rodriguez, A. (2011). Inclusão e qualidade de vida na educação do alunado com deficiência. Linhas Críticas, 17(33), 221-236. http://www.redalyc.org/html/1935/193521546003/

Verdugo, M. A., Navas, P., Gómez, L. E., & Schalock, R. L. (2012). The concept of quality of life and its role in enhancing human rights in the field of intellectual disability. Journal of Intellectual Disability Research, 56(11), 1036-1045. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2788.2012.01585.x/epdf

Verdugo, M. A., & Rodríguez, A. (2008). Valoración de la inclusión educativa desde diferentes perspectivas. Siglo Cero: Revista Española sobre Discapacidad Intelectual, 39 (228), 5-25. http://sid.usal.es/10955/8-2-6

WHO (1997). WHOQOL: measuring quality of life. http://apps.who.int/iris/bitstream/10665/63482/1/WHO_MSA_MNH_PSF_97.4.pdf [Retrieved 14 July 2017].